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A Study of Baricitinib (LY3009104) in Adult and Pediatric Japanese Participants With NNS/CANDLE, SAVI, and AGS

Terminated · Phase 2, Phase 3 · NCT04517253

Conditions: Nakajo-Nishimura Syndrome, Chronic Atypical Neutrophilic Dermatosis With Lipodystrophy and Elevated Temperature Syndrome, STING-Associated Vasculopathy With Onset in Infancy, Aicardi Goutieres Syndrome

At a glance

Research payments reported, 2025
$8,100
U.S. investigators named
0
Sites paid
1
Planned or actual enrollment
10

About the trial

Sponsor
Eli Lilly and Company
Tested
Baricitinib (drug)
Dates
Started 2020-10-27; completion 2024-11-28
Results posted
Yes

The main purpose of this study is to evaluate the efficacy and safety of baricitinib in adult and pediatric Japanese participants with Nakajo-Nishimura Syndrome/chronic atypical neutrophilic dermatosis with lipodystrophy and elevated temperature (NNS/CANDLE), STING-associated vasculopathy with onset during infancy (SAVI), and Aicardi-Goutières Syndrome (AGS).

From ClinicalTrials.gov, last updated 2025-07-10. Full record, eligibility and contacts (opens in a new tab)

Industry funding

Eli Lilly and Company reported $8,100 in research payments for this study in 2025 (1 payments).

Research payments usually go to hospitals, universities and research sites to run a study, not to the investigators personally. A payment is not evidence of wrongdoing.

Sites paid to run it

Sources: CMS Open Payments research payments (program year 2025) and ClinicalTrials.gov, U.S. National Library of Medicine.